Newborn Screening Coordinator- Research Hematology

Overview:

Job Description Summary:

Job Description:

Essential Functions:

• Tracks and conducts follow-up on all newborns identified with a positive or potentially positive hemoglobin trait or disease result via the ODH Newborn Screening (NBS) Program and other referral sources to assure confirmation of results and hemoglobinopathy counseling services disease education and/ or referral to specialized medical teams and resources for diagnostic, preventive and evaluative management of hemoglobinopathies.
• Coordinates and facilitates education sessions and reciprocal referrals for hemoglobinopathy counseling services in conjunction with primary care providers, Regional Hematology-Oncology Centers and Regional Comprehensive Genetic Centers.
• Serves as a liaison and resource consultant regarding hemoglobinopathies, newborn screening and hemoglobinopathy counseling services to regional agencies and organizations, health and allied health professionals and providers, patients or consumers, and the public.
• Participates in outreach strategies to increase patient referrals, compliance and access to comprehensive sickle cell services in conjunction with Regional Hematology-Oncology Centers.
• Assists with the preparative writing and submission of Regional Sickle Cell Program (RSCP) reports and grant proposals.
• Maintains records system and data/statistics on RSCP newborn screening and hemoglobinopathy counseling services for ODH data collection, program evaluation and other reporting requirements.

Education Requirement:

Bachelor's Degree in relevant field, required.

Master’s Degree in relevant field, preferred

Skills:

• Working knowledge of hemoglobinopathies and/or chronic disease.
• Must continuously advance knowledge in the area of hemoglobinopathies, newborn screening, hemoglobinopathy counseling and culturally and linguistically appropriate service delivery.
• Demonstrated oral and written communication skills.
• Self-motivated with the ability to function independently.
• Must be able to work closely with diverse populations and professionals from other disciplines.
• Must be able to develop and maintain collaborative relationships with pediatric and adult hematology and primary care service providers in the region and work as part of an integrated team.

Experience:

• Two years of college intern or professional experience with social service agency, community-based program or health related institution, required.
• Training or experience in counseling techniques, required.

Physical Requirements:

OCCASIONALLY: Decision Making, Flexing/extending of neck, Lifting / Carrying: 0-10 lbs, Walking

FREQUENTLY: Problem solving

CONTINUOUSLY: Audible speech, Computer skills, Hand use: grasping, gripping, turning, Hearing acuity, Interpreting Data, Peripheral vision, Repetitive hand/arm use, Seeing – Far/near, Sitting

"The above list of duties is intended to describe the general nature and level of work performed by individuals assigned to this classification. It is not to be construed as an exhaustive list of duties performed by the individuals so classified, nor is it intended to limit or modify the right of any supervisor to assign, direct, and control the work of employees under their supervision. EOE M/F/Disability/Vet"